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News

News

Foundation Fighting Blindness launching its largest natural history study to date.

14 November

The study will help clinical researchers gain a better understanding of the course of retinal degeneration [...]

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News

Save Sight Now Europe is now live!

25 August

When we read the “about us” section on Save Sight Now’s website, we couldn’t stop saying: “they’re like us, they’re like us!”[...]

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News

Understanding Usher Syndrome Type 1B

20 August

Usher syndrome Type 1 is characterized by affecting three main senses: hearing, vision and balance [...]

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News

First Ever USH1B Non Human Primate Model Created!

15 August

Save Sight Now has funded the creation of an animal model to find a treatment for Usher 1B syndrome [...]

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Media

Media

An Article at TOT BARCELONA, Barcelona’s digital newspaper.

Tot Barcelona | 14.11.22

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Media

The report Sortir du silence de la surdité at the Mise au Point programme at RTS (Radio télévision Suisse)

RTS | Mise au point | 13.11.22

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Media

MeteoMauri and Catalunya Radio offered the opportunity to talk about our story and the creation of SSNEU.

Catalunya Radio | MeteoMauri | 10.11.22

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Media

Radio Gràcia: An interview explaining SSNEU, Origines and Goal.

Gràcia Radio | Gracienques program | 08.11.22

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Media

Save Sight Now Europe at Diario de Burgos. Love that led Espinosa Adell family to create the organisation.

Diario de Burgos | 28.10.22

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Media

Save Sight Now Europe at La Xarxa news. Hello Catalunya!

La Xarxa | Notícies en Xarxa | 17.10.22

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Media

RTS report with Meyer family: “The daily challenges of families with children affected with rare diseases”.

Tot Barcelona | 14.11.22

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Media

Article on La Liberté de Fribourg: Usher syndrome, for Félix’s family, happiness goes as far as his eyes can see.

La Liberté Fribourg | 3.10.22

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