First gene therapy treatment for a hereditary form of deafness in the USA The Children’s Hospital of Philadelphia successfully administered the first gene therapy…

SSNEU is collaborating with breakthrough research on gene editing for USH1B that offers hope for patients In a significant stride toward combating Usher Syndrome…

Incredible experience at the Save Sight Now Europe | Foundation Usher Syndrome presentation event last Tuesday 7th November 2023, at the Old Estrella Damm…

Save Sight Now Europe has awarded its first grant to the University of Wisconsin-Madison to fund research on gene editing in retinal degeneration. The…

Uni-Rare is a Natural History Study of vision loss progression. It is a critical and necessary step in supporting the approval of upcoming clinical…

Researchers now have a model for testing gene therapy as a treatment for a leading cause of blindness-deafness. Save Sight Now has helped fund this…

It will be for 1,500 People with Inherited Retinal Diseases Caused by Rare Mutated Genes. It will include USH1B and Save Sight Now helped…

We are starting a difficult journey, but one that comes from within, from our need to push and support, and from our will to…

Defining Characteristics & Research Significance Being born severe to profoundly deaf or gradually losing hearing, losing vision starting in infancy or later in adolescence,…

Save Sight Now is funding groundbreaking research on Usher syndrome. For the last two years, Save Sight Now has supported a project that is…