Thousands of children around the world are born with hearing and balance problems due to Usher Syndrome Type 1B. They will also be losing their sight during their childhood years due to the degeneration of the retina caused by Retinitis Pigmentosa (RP).
Save Sight Now, an organization created in the United States, has partnered with Foundation Fighting Blindness to help promote and finance medical research focused on finding treatment to save these children’s sight.
Save Sight Now Europe was born under the wing of Save Sight Now to fulfill the need of supporting and enhancing scientific research. Families from both sides of the Atlantic are working together tirelessly to find a treatment to cure Usher 1B Syndrome as soon as possible.