Committed to Curing

Childhood Blindness

Thousands of children around the world are born with hearing

and balance problems due to Usher Syndrome Type 1B.

They will also be losing their sight during their childhood years

due to the degeneration of the retina caused by Retinitis Pigmentosa.

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SAVE SIGHT NOW EUROPE, AN ORGANIZATION

Committed to Curing Childhood Blindness

Thousands of children around the world are born with hearing and balance problems due to Usher Syndrome Type 1B. They will also be losing their sight during their childhood years due to the degeneration of the retina caused by Retinitis Pigmentosa (RP).

Save Sight Now, an organization created in the United States, has partnered with Foundation Fighting Blindness to help promote and finance medical research focused on finding treatment to save these children’s sight. 

Save Sight Now Europe was born under the wing of Save Sight Now to fulfill the need of supporting and enhancing scientific research. Families from both sides of the Atlantic are working together tirelessly to find a treatment to cure Usher 1B Syndrome as soon as possible.

We have identified flagship teams of investigators who are working on therapeutic strategies that can potentially slow-down, stop, or reverse degeneration of the retina caused by the Usher Syndrome.

But we also need your help. Rare diseases such as Usher Syndrome rarely get any attention or funding, that is why the financial burden of the research efforts lies with patient organizations like Save Sight Now.

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OUR STORY

Bruna, Our Driving Force

Bruna was born in Geneva (Switzerland) in October 2020. During the pregnancy we did the most complete tests doctors suggested, all results were positive, but despite everything, there are times that life prevails. Bruna was diagnosed with Usher syndrome type 1B when she was only 9 months old. In her first birthday she already received two cochlear implants and started speech therapy and physiotherapy sessions to give her the maximum available support.

Actually, all of our efforts are oriented on finding a cure for the Retinitis Pigmentosa. We create Save Sight Now Europe. Our daughter Bruna is our driving engine to work each and every day. We will not give up until we find the cure.

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Together we can make science advance and find a treatment for Usher syndrome type 1B.